The collection “A Story to Explain an Illness®” from K’Noé Editions helps families explain the situation and encourages dialogue.
The story was written based on testimonies from children at the Center for Reference for Neuromuscular Diseases and ALS at the CHU of Nice. It retraces the struggle and journey of all families facing an incurable disease. It describes particularly how the situation is experienced by the children of the ill.
The book tells the story of a young teenager whose mother suffers from ALS, a disease that is not well known but is common.
Lucas sees the family’s daily routines turned upside down overnight. Everyone must adapt and find new bearings. He feels a need to understand what is happening to his mother.
The book traces the struggle and journey of all families facing an incurable disease. It describes particularly how the situation is experienced by the children of the ill.
Those who have testified hope through this work to provide a little support to other children who will one day face illness.
The authors: Liliane Messika and Katrine Leverve
The illustrator: Marie-Noëlle Pichard, K’Noë Editions
